Some useful SEND contacts – please let us know if you can think of more to add:
Advisory Centre for Education ACE Education Advice & ACE Education Training 72 Durnsford Road, London, N11 2EJ. Phone: 0208 888 3377 Email: enquiries@ace-ed.org.uk Website: www.ace-ed.org.uk
AFASIC – voice for life 1st Floor 20 Bowling Green Lane London EC1R 0BD. Phone: 020 7490 9410 Helpline: 0300 666 9410 (Monday to Friday, 10.30am to 2.30pm) Website: www.afasic.org.uk
Association for Spina Bifida and Hydrocephalus Asbah House 42 Park Road Peterborough PE1 2UQ. Phone: 01733 555 988 Helpline: 0845 450 7755 Email: helpline@asbah.org Website: www.asbah.org
Ataxia UK Lincoln House Kennington Park 1-3 Brixton Road London SW9 6DE. Phone: 020 7582 1444 Helpline: 0845 644 0606 Email: helpline@ataxia.org.uk Website: www.ataxia.org.uk
Barnardo’s Tanners Lane Barkingside Ilford Essex IG6 1QG. Phone: 020 8550 8822 Helpline: 0808 8005000 Website: www.barnardos.org.uk
Bay Benefits Phone: 07530 790354 Website: www.carersaidtorbay.co.uk/bay-benefits
Bibic Old Kelways, Somerton Road, Langport TA10 9SJ. Phone: 01458 253344 Website: https://bibic.org.uk/
British Dyslexia Association Unit 8 Bracknell Beeches Old Bracknell Lane Bracknell RG12 7BW. Phone: 03334 054555 Helpline: 0333 405 4567 (Monday to Friday, 10-12:30am, 1-4pm. Closed Wednesday afternoons) Email: helpline@bdadyslexia.org.uk Website: www.bdadyslexia.org.uk
British Deaf Association BDA Head Office 3rd Floor 356 Holloway Road London, N7 6PA. Phone: 0207 697 4140 Facetime: 07795 410724 Email: bda@bda.org.uk Skype: bda.britdeadassoc Website: www.bda.org.uk
Brittle Bone Society Grant-Paterson House 30 Guthrie Street Dundee DD1 5BS. Phone: 01382 204 446 Freephone helpline: 0800 028 2459 Email: contact@brittlebone.org Website: www.brittlebone.org
Carers Aid Torbay The Olive Carers Centre, Victoria Park Road, Torquay TQ1 3QH. Phone: via 01803 323510 Website: www.carersaidtorbay.co.uk
Centre for Studies on Inclusive Education (CSIE) The Park Centre Daventry Road Knowle Bristol BS4 1DQ. Tel: 0117 353 3150 Email: admin@csie.org.uk Website: www.csie.org.uk
Cerebra 2nd Floor Offices, The Lyric Buildings, King Street, Carmarthen SA31 1BD. Phone: 01267 244200 Email: enquiries@cerebra.org.uk Website: www.cerebra.org.uk
Challenging Behaviour Foundation Website: www.challengingbehaviour.org.uk
Children’s Legal Centre Coram Children’s Legal Centre Riverside Office Centre Century House North North Station Road Colchester CO1 1RE. Free advice line: 0808 8020008 Email: info@coramcic.org.uk Website: www.childrenslegalcentre.com
Civil Legal Advice (CLA) Legal Aid https://www.gov.uk/civil-legal-advice
Council for Disabled Children c/o National Children’s Bureau 8 Wakley Street London EC1V 7QE. Phone: 0207 843 1900 Email: cdc@ncb.org.uk Website: www.councilfordisabledchildren.org.uk
Cystic Fibrosis Trust 11 London Road Bromley Kent BR1 1BY. Phone: 0208 464 7211 Helpline: 0300 373 1000 Email: enquiries@cysticfibrosis.org.uk
Diabetes UK Macleod House 10 Parkway London NW1 7AA. Phone: 0345 123 2399 Email: info@diabetes.org.uk Website: www.diabetes.org.uk
Disability Living Foundation Ground Floor Landmark House Hammersmith Bridge Road London W6 9EJ. Phone: 020 7289 6111 Helpline: 0300 999 0004 Email: info@dlf.org.uk Website: www.dlf.org.uk
Down’s Syndrome Association Langdon Down Centre 2a Langdon Park Teddington TW11 9PS. Phone: 0333 121 2300 (Monday to Friday, 10am to 4pm) Email: info@downs-syndrome.org.uk Website: www.downs-syndrome.org.uk
Dyspraxia Foundation 8 West Alley Hitchin Hertfordshire SG5 1EG. Phone: 01462 455 016 Helpline: 01462 454 986 Email: dyspraxia@dyspraxiafoundation.org.uk Website: www.dyspraxiafoundation.org.uk
Dyslexia Action Dyslexia Action House 10 High Street Egham, Surrey TW20 9EA. Phone: 0300 303 8357 Email: info@dyslexiaaction.org.uk Website: www.dyslexiaaction.org.uk
Dyslexia-SpLD Trust Unit 8 Bracknell Beeches Old Bracknell Lane Bracknell Berkshire RG12 7BW. Phone: 01344 381564 Website: www.thedyslexia-spldtrust.org.uk
English Federation of Disability Sport SportPark Loughborough University 3 Oakwood Drive Loughborough LE11 3QF. Phone: 01509 227750 Website: www.efds.co.uk
Epilepsy Action New Anstey House Gate Way Drive Yeadon Leeds LS19 7XY. Phone: 0113 210 8800 Helpline: 0808 800 5050 Email: epilepsy@epilepsy.org.uk Website: www.epilepsy.org.uk
Family Fund 4 Alpha Court Monks Cross Drive York YO32 9WN. Phone: 01904 621115 Textphone: 01904 658085 Email: info@familyfund.org.uk Website: www.familyfund.org.uk
Haemophilia Society Petersham House 57a Hatton Garden London EC1N 8JG. Phone: 0207 831 1020 Helpline: 0800 018 6068 Email: info@haemophilia.org.uk Website: www.haemophilia.org.uk
Headway National Head Injuries Association Bradbury House 190 Bangall Road Old Basford Nottingham NG6 8SF. Phone: 0115 924 0800 Free helpline: 0808 800 2244 Email: helpline@headway.org.uk
Huntington’s Disease Association Suite 24, Liverpool Science Park IC1 131 Mount Pleasant Liverpool, L3 5TF. Phone: 0151 331 5444 Fax: 0151 298 9440 Email: info@hda.org.uk Website: www.hda.org.uk
I CAN (Invalid Children Aid Nationwide) 8 Wakley Street London EC1V 7QE. Phone: 0845 225 4071 Email: info@ican.org.uk Website: www.ican.org.uk
IPSEA (Independent Provider of Special Educational Advice) Hunters Court Debden Road Saffron Walden CB11 4AA. Phone: 01799 582030 Advice Line: 0800 0184 016 Website: www.ipsea.org.uk
KIDS (Working with disabled children, young people and their families) 7-9 Elliott’s Place London N1 8HX. Phone: 0207 359 3635 Website: www.kids.org.uk
Leukaemia Care One Birch Court Blackpole East Worcester WR3 8SG. Phone: 01905 755 977 Care line: 0808 801 0444 Email: care@leukaemiacare.org.uk Website: www.leukaemiacare.org.uk
LOOK (National Federation of Families with Visually Impaired Children) Look National Office Queen Alexander College 49 Court Oak Road Harborne Birmingham B17 9TG. Phone: 0121 428 5038 Email: information@look-uk.org Website: www.look-uk.org
MENCAP 123 Golden Lane London EC1Y 0RT. Phone: 0207 454 0454 Helpline: 0808 808 1111 (Monday-Friday 9am-5pm) Email: information@mencap.org.uk Website: www.mencap.org.uk
MIND (National Association for Mental Health) 15-19 Broadway Stratford London E15 4BQ. Phone: 0208 519 2122 Email: contact@mind.org.uk Website: www.mind.org.uk
Motability Warwick House Rowden Road Harlow Essex CM19 5PX. Phone: 01279 635999 Website: www.motability.co.uk
Muscular Dystrophy Campaign 61A Great Suffolk Street London SE1 0BU. Phone: 020 7803 4800 Information and support line: 0800 652 6352 Email: info@muscular-dystrophy.org Website: www.muscular-dystrophy.org
National Asthma UK 18 Mansell Street London E1 8AA. Phone: 0207 786 4900 Helpline: 0800 121 6244 Website: www.asthma.org.uk
National Association of Citizens’ Advice Bureaux 3rd Floor North 200 Aldersgate Street London EC1A 4HD. Phone: 0300 023 1231 Website: www.citizensadvice.org.uk
National Autistic Society 393 City Road London EC1V 1NG. Phone: 0207 833 2299 Helpline: 0808 8004104 (Monday to Friday, 10am to 4pm) Website: www.autism.org.uk
National Association of Special Educational Needs 4/5 Amber Business Village Amker Close Tamworth B77 4RP. Phone: 01827 311 500 Email: welcome@nasen.org.uk Website: www.nasen.org.uk
National Blind Children’s Society Hillfields Reading Road Burghfield Common Reading RG7 3YG. Phone: 01278 764 770 Helpline: 0800 781 1444 Email: services@blindchildrenuk.org Website: www.blindchildrenuk.org
National Deaf Children’s Society Ground Floor South Castle House 37-45 Paul Street London, EC2A 4LS. Phone: 0207 490 8656 Helpline: 0808 800 8880 Email: ndcs@ndcs.org.uk Website: www.ndcs.org.uk
National Eczema Society Hill House Highgate Hill London N19 5NA. Phone: 0207 281 3553 Helpline: 0800 089 1122 (Monday to Friday, 8am to 8pm) Email: helpline@eczema.org Website: www.eczema.org
National Federation of the Blind 215 Kirkgate Wakefield West Yorkshire WF1 1JG. Phone: 01924 291313 Website: www.nfbuk.org
National Society for Epilepsy Chesham Lane Chalfont St Peter Buckinghamshire SL9 0RJ. Phone: 01494 601 300 Helpline: 01494 601 400 (Monday, Tuesday, Thursday, Friday: 9am to 4pm. Wednesday: 9am to 8pm) Website: www.epilepsysociety.org.uk
Network 81 10 Boleyn Way West Clacton Essex CO15 2NJ. Helpline: 0845 077 4055 Email: network81@hotmail.co.uk Website: www.network81.org
Parents for Inclusion Unit 2 336 Brixton Road London SW9 7AA. Phone: 0207 738 3888 Helpline: 0800 652 3145 Email: info@parentsforinclusion.org Website: www.parentsforinclusion.org
Physically Disabled and Able Bodied (PHAB) Summit House 50 Wandle Road Croydon CR0 1DF. Phone: 020 8667 9443 Email: info@phab.org.uk Website: www.phab.org.uk
Pre-school Learning Alliance The Fitzpatrick Building 188 York Way London N7 9AD. Phone: 020 7697 2500 Website: www.pre-school.org.uk
Rathbone (Positive life choices for young people) 4th Floor Wellington House 39-41 Piccadilly Manchester M1 1L. Phone: 0800 731 5321 Email: external.communication@rathboneuk.org Website: www.rathboneuk.org
Royal National Institute of Blind People 105 Judd Street London WC1H 9NE. Phone: 020 7388 1266 Helpline: 0303 123 9999 Typetalk: 0800 51 51 52 Email: helpline@rnib.org.uk Website: www.rnib.org.uk
SCOPE (Disability advice) 6 Market Road London N7 9PW. Phone: 0207 619 7100 Helpline: 0808 800 3333 Email: helpline@scope.org.uk Website: www.scope.org.uk
SENDIASS Torbay 4-8 Temperance Street, Torquay TQ2 5PU. Phone: 01803 212638 Website: www.sendiasstorbay.org.uk
SENSE 101 Pentonville Road London N1 9LG. Phone: 0300 330 9250 Information Helpline: 0300 330 9256 Textphone: 0300 330 9252 Email: info@sense.org.uk Website: www.sense.org.uk
Sickle Cell Society 54 Station Road London NW10 4UA. Phone: 020 8961 7795 Email: info@sicklecellsociety.org Website: www.sicklecellsociety.org
SOS!SEN East Molesey, Surrey KT8 9BE. Term-time helpine 0300 302 3731 or 0208 538 3731 https://sossen.org.uk/
Spinal Injuries Association SIA House 2 Trueman Place Oldbrook Milton Keynes MK6 2HH. Phone: 0845 678 6633 Helpline: 0800 980 0501(Monday to Friday 9.30am-1pm and 2pm-4.30pm) Email: sia@spinal.co.uk Website: www.spinal.co.uk
The Stroke Association Stroke House 240 City Road London EC1V 2PR. Phone: 020 7566 0300 Helpline: 0845 30 33 100 Textphone: 1800 1030 3303 3100 Email: info@stroke.org.uk Website: www.stroke.org.uk
SKILL: National Bureau for students with disabilities Unit 3, Floor 3 Radisson Court 219 Long Lane London SE1 4PR. Phone: 0207 450 0620 Helpline: 0800 328 5050 Email: students@disabilityrightsuk.org Website: www.skill.org.uk
The National Network of Parent Carer Forums Website: www.nnpcf.org.uk
Torbay Council SEN Team Phone: 01803 208274 Website: www.torbay.gov.uk/senassessments
Torbay Parent Carer Forum Phone: 07773 929777 Email : info@torbaypcf.org.uk Website: www.torbaypcf.org.uk
Special Needs Jungle Website: www.specialneedsjungle.com
Young Minds Suite 11, Baden Place Crosby Row London, SE1 1YW. Phone: 020 70895050 Helpline: 0808 802 5544 Email: ymenquiries@youngminds.org.uk Website: www.youngminds.org.uk
